Doctor available in case of emergency: +39 333 4004422
In case of lack of C1- BERINERT, call:
CSL Behring S.p.A. – P.le Stefano Turr, n. 5 – 20149 – Milan – Italy – Tel. +39 02 34964207 / 208 – Fax +39 02 34964264
In case of lack of Firazyr ® (Icatibant / acetate), call:
Shire Italia SpA – Piazza della Nunziata, 5/4 – 16124 – Genova – Italy – Tel: +39 010 2758377 – Fax: +39 010 2745341
To contact the association:
Vincenzo Penna – Fraz. Quarto Inf. 192 – 14030 Asti – Tel/Fax: +39 0141 299274 – Email: info@angioedemaereditario.org
Nilla Ciairano – Via Piedicavallo 20 – 10145 Torino – tel. +39 3334023513 – Email: nillaci@fastwebnet.it
Italian centers for hereditary angioedema:
- Ancona
- Aosta
- Bari
- Biella
- Cagliari
- Catania
- Civitanova Marche
- Firenze
- Genova
- Messina
- Milano
- Napoli
- Padova
- Palermo
- Pisa
- Roma
- Salerno
Requisites
Italian centers for hereditary angioedema: requirements
• Name of the person responsible and reference figure
• Outpatient Activities • Diagnostic tests carried out by the center or by external structures
• Management of acute attacks (in the emergency room with availability of drugs, assistance of patients during operations and / or maneuvers in the mouth, etc.) • Medication Management (treatment plans and supply of drugs)
• Training: for the physicians of the center, meeting / training for self-administration of medicines for patients
• Support Specializations (dentistry, gynecology / obstetrics)
• Official recognition (authorized certification centers of rare diseases have official recognition in Campania, Lazio, Lombardy, Puglia, Veneto, Sicily)
• Inclusion in the list of centers with such features
Dental Consultancy
Please remember that maneuvers on the oral cavity, such as tooth extractions, endoscopic examinations, etc. can cause edema of the glottis. People can have treatment and dental advice in the specialized centers listed below:
MILAN
Dentistry Surgery Manager: Dr. Antonella Sparaco A.O. Luigi Sacco – Via G.B Grassi, 74 20157 – Milan – e-mail: odontoiatria@hsacco.it – FAX: 02 39042397
For appointments contact Mrs. Beba: Tel. 02 39042298
For clinical information contact Drs: Antonella Sparaco and Mario Ghezzi (ghezzi.mario@hsacco.it) – Tel .: 02 39042638
The service is available on Wednesday
PADOVA
University of Padova Dental Clinic Studies: Via Venezia 20, 35100 Padova
Director: Prof. Edward Stellini Dental surgeon
Reference: Dott. Stefano Sivolella
Anesthesiologists: Prof. John Manani, Prof. Enrico Facco, Dr. Gastone Zanette
Patients can refer directly to Dott. Mauro Cancian Medical Clinic 1st tel. +39,049,821 4452- Fax +39,049,821 2151-
e-mail: mcancian@unipd.it
ROME
University – Policlinico Tor Vergata
Professor Barlattani
Referent for Dentistry Patients can refer directly to Prof. Perricone: Cell. 3204333759 e-mail: roberto.perricone@uniroma2.it
CIVITANOVA MARCHE
A.S.U.R. MARCHE – WIDE AREA N.2 – HOSPITAL FABRIANO (AN)
Unit of Oral Surgery and Stomatology Director Dott. Roberto Mazzanti
Dental Therapy service for patients A.E.E. Responsible Dott. Roberto Volpi Tel. 0732/707 294 e-mail: roberto.volpi@sanita.marche.it
ANCONA
AZIENDA OSPEDALIERO UNIVERSITARIA OSPEDALI RIUNITI di ANCONA
SOD Surgical Dentistry and Specialization Director Dr. V. Zavala Via Conca 71 – ANCONA Tel .: +390715963144
Regional Reference Center for prevention and treatment of oral disease in patients with disabilities and at risk Manager: Dr. Alessandra Nori Tel + 39071-5963064 e-mail: a.nori@ospedaliriuniti.marche.it
Gynecological Counsultancy
In collaboration with Prof. Caterina de Carolis, it was launched a consulting service aimed at all gynecological patients suffering from hereditary angioedema.
Clinica Villa Pia – Polispecialistica Privata Convenzionata
Via Ramazzini, 93 – Roma
Responsible Physician: Prof. Caterina De Carolis
For information and reservations: 065827875 – e-mail: caterina.decarolis@clinicavillapia.it – www.clinicavillapia.it