Istituzioni
 www.governo.it
 www.italia.gov.it
 www.sanita.it
 www.iss.it
 www.agenziafarmaco.it
 www.inps.it
 http://ec.europa.eu/health/ph_threats/non_com/rare_diseases_en.htm
 www.who.org
Organizzazioni
 www.Telethon.it
 www.informagene.it
 www.marionegri.it
 www.aidweb.org
 www.cercasalute.it
 www.salus.it
 www.eurordis.org
 www.orphanet.org
 www.uildm.org
 www.handylex.org
 http://superando.eosservice.com/
 www.anmic.it
 www.retemalattierare.it
 www.uniamo.org
Associazioni - Angioedema ereditario
 HAEI - International Patient Organization for C 1 Inhibitor Deficiencies : www.HAEI.org
 ARGENTINA: AEH - Argentina - www.angioedemahereditario.com
 AUSTRIA: HAE Austria -
Contact: Christian Müllner, -
Stratzing, Am Anblick 29, A-3552 Lengenfeld b. Krems
Tel: +650 - 2152001 ,
e-mail: office@hae-austria.at
Dr. Aberer Werner Werner, e-mail: aberer@meduni-graz.at - Website: http://www.berinet.at/
 BELGIO: HAE Belgium : www.haebelgium.be
 CANADA: Canadian Hereditary Angioedema Society / Société d'angioédème héréditaire du Canada (CHAES/SAHC) -www.haecanada.com
 FINLANDIA: HAE Finland - Contact: Elina Nykyri,
e-mail: elina_nykyri@hotmail.com
 DANIMARCA: HAE DK- www.hae.dk
 FRANCIA: Association Française des Malades Soufrant d'Angio-œdèmes par deficit en C1 Inhibiteur(AMSAO) - http://amsao.free.fr
 GRAN BRETAGNA: Primary Immunodeficiency Association - www.pia.org.uk
 GERMANIA: German Society for Angioedema Research - www.angioedema.de
GERMANIA:Vereinigung e.V.- für alle Personen , die am hereditären Angioõdem leiden (hereditary angioedema)-
 www.angioedema.de
 NORVEGIA : Norsk Immunsviktforening - HAE Norge
- www.haenorge.net
 OLANDA: Dutch association of HAE and QE - www.hae-qe.nl
 ROMANIA: Asociatia Româna de Angioedem Ereditar -
Contact: Dr. Dumitru Moldovan,
e-mail: imoldovan@clicknet.ro -
Website: http://www.haenet.ro/ro/index.html
 SPAGNA: AEDAF - Asociación Española de Angioedema Familiar por Deficiencia de C1 inhibidor -
 www.aedaf-es.org
 SVIZZERA: HAE-Vereinigung Schweiz - www.hae-vereinigung.ch
 UNGHERIA: Hungarian Association of Angioedema Patients: Contact: Mr. Istvan Nagy, President
H-6000 Kecskemét Erdõ street 9, Hungary
Tel: +36 76 504 151 | Fax: +36 76 504 151
e-mail: sorkoz@axelero.hu - Web site: www.haenet.hu
 USA: Hereditary Angioedema Association - www.haea.org
Altri contatti
 BRASILE: Dr. Anete SevciovicGrumach
Primary Immunodeficiency Outpatient Group
Lab of Medical Investigation in Allergy and Immunology - University of São Paulo
Av dr Eneas de Carvalho Aguiar, 500 BII 3rd floor
TEL . : 0055.11.30667499 - FAX : 0055.11.30817190
E -MAIL: grumach@ups.br
 CROAZIA: Danijela Cerin Udovicic - Braykovici B.B. - 52 352 KANFANAR - TEL./FAX : +385 52 848 250 - 848 230
E-MAIL : danijela.cerin.cerin@dealer.renault.hr
 POLONIA: Polish Society for Assistance of Patients with Angioedema
Contact: Prof. Krystyna Obtulowicz, Tel: +48 12 424 88 90 | Fax: +48 12 423 11 22
e-mail: mmobtulo@cyf-kr.edu.pl
 SVEZIA: PIO
Contact: Kenneth Almkvist , HAE- group coordinator -
Kerstin Torstensson Box 120 53 SE - 402 41 Göteborg
Tel: +46-313659824 | Fax: +46-31145976
e-mail: pio@telia.com
 UCRAINA: Yelena Mykal, Patient Representative - 28A, Lesya Ukrainka, Apt. 104, 01133 KIEV 133 UKRAINE
TEL.: +38 044 4400786 / +38 044 2963234
E-MAIL: helena_mykal@yahoo.com
Case Farmaceutiche
 www.dyax.com
 www.jerini.com
 www.pharming.com
 www.cslbehring.com
 www.levpharma.com
 www.sanquin.nl
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